Sound

Know what the most beautiful sound in the world is? Waking up to Elijah humming. That's all. No, that's not all. Know what an ugly sound is? A "Thud" as his legs give way and he falls to the ground, followed by the sound of hyperventilating to catch his breath and then the humming of the nebulizer. Hearing him say: "Have Dad get me water, I don't want you to leave," is both consoling and painful. So glad he wants me near him, so painful because he is in the position of needing that. Healing please work more quickly. Nevertheless, such gratitude that I get to hear him hum.

One Day at a Time

Trying to keep up on my baby. (He'll hate that I said that.) Yesterday was his second dosing of pembrolizumab (immunology). He was quite the trooper. The oncologist was supposed to have the drug shipped down to Utah Valley Regional Medical Center for the treatment so he wouldn't have to travel, but he forgot to send it. So, Elijah got in the car and went to Salt Lake City for the first time in 3 weeks. We thought that it might be too hard for him, but he did it like a champ! Came home and ate and conversed and kept going. He had a little trouble breathing (he's got tumors in his lungs) but the doctor had prescribed a nebulizer and he used it for 5 minutes and was good for breathing through the night. Today he's laid back to recuperate, but he's awake, alert, and right now is watching Fargo Season 2 episode 7 or so. (Not sure, I can't stomach it.) So, I've set up this blog to share Elijah's activities to keep y'all informed. But I don't want to be the "keeper" of it all. Many of you spend time entertaining him. I work all day long. I'd love to put any of his friends on as authors and you can blog about your days with him. Help him have memories to smile at when pain might be tough. He told me today he is weaning himself from taking his pain meds every 3 hours! He's gonna beat this! When he does, all of his friends will have to accompany him to children's hospitals as he plays and sings and encourages others. So, Jentry, Jonny, Jared, Kyle, Michael, Ryan, Benjamin, Mike, Grandma Clester, Katie, Iman, Miles, Keira, Beck, Bob, Liza (Ben's friend), Leanne, Gemma, Tom, Dick, and Harry add your pictures, posts, jokes, videos, lame stories, ideas, and let's all experience this roller coaster ride life's given us!

As you can see from my wonderful photoshop skills, y'all will want to help for Elijah's sake!